Genesis is a cute 6-month-old baby girl born with Autosomal Recessive Three M Syndrome. An extremely rare genetic disorder, Three M Syndrome is characterized by short stature (dwarfism), and other skeletal malformations. She is on oxygen 24 hours, 7 days a week. She has been in the intensive care unit twice since she was born and was just released from her second hospital stay. Her mom, Teresa, a single parent with a 9-year old son, had to stop working during her pregnancy because of sciatic nerve pain. She has not been able to go back to work due to her daughter’s condition. Genesis was referred to Hearts Aligned by a social worker from Cottage Health.
Being in state of constant emotional and financial crisis, many of her family’s bills were left untouched, including utilities, medical, and rent. Every week she has to make choices to pay some of the bills or to feed her family. Hearts Aligned, with contributions from our supporters, stepped in advocating with these entities and is helping by paying utility bills and is working with her to get her medical bills paid.
Teresa wants all to know, “Our special kids don’t come to the world by themselves, they come with their own angels to protect us and to help us.”
Thank you to our donors that have helped this wonderful family! We are receiving many referrals from our medical partners and with your help, we can help these families.